Allocation 37 – The Daisy Garland – epilepsy sleep monitors – £1,200

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Allocation 37 – The Daisy Garland – epilepsy sleep monitors – £1,200 2020-02-20T18:18:41+00:00

Project Description

According to the Epilepsy Society, epilepsy affects at least 300,000 people in the UK – 60,000 of these people are children under the age of 16. Epilepsy affects 1 in every 100 children. It is the most common serious neurological condition in the world and can affect anyone at any time in their life – it has no respect for age, sex, race or social class. Seizures tend to develop in childhood or by late adolescence, but the likelihood of developing epilepsy rises again after the age of 65.
One in twenty people will have a single seizure sometime in their life.

The Daisy Garland is a family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). The charity provide grants for night-time breathing monitors to children with drug-resistant epilepsy.

One of our supporters Toni Priddey organised training (with her brother John Gartland)  for all of our supporters and fundraisers who took park in the 2019 Chester 10K. Toni’s son Will was diagnosed with epilepsy at the age of 2. Will’s seizures started dramatically with seizures lasting over an hour and requiring medical intervention to stop them. Even more scary was the fact that most of them happened in his sleep, up to 12 a night so Toni had a rota of who would sit and watch him in case one of these turned into another hour long status seizure. The Daisy Garland helped Toni with as much information as they could and provided a night time breathing monitor which meant that she we could sleep knowing Will was safe.